It’s that time of year again!
Key rare disease stakeholders from all over the world are coming together to connect, learn, and celebrate at the 5th Annual RARE Patient Advocacy Summit and Tribute to Champions of Hope. Please join us at the Hyatt Regency Huntington Beach Resort & Spa September 22-24 for a rare weekend of hope.
Join us at Global Genes’ RARE Patient Advocacy Summit where patients, caregivers, and advocates walk away equipped with actionable next steps whether they have been recently diagnosed or have been advocating in rare disease for decades. Don’t miss this opportunity to make critical connections! A limited amount of travel scholarships are available to patient advocates! Click here for more information.
R.S.V.P. for an unforgettable evening, where we honor remarkable individuals who are inspiring and innovating in the Rare Community. The evening will include meaningful presentations, entertainment, and surprise guests. Click here to learn more about the rare event of the season!
We look forward to seeing you September 22-24 in sunny Huntington Beach, California! For detailed information on travel and accommodations click here.
Stay Connected
Sign up for updates straight to your inbox.