Building awareness and communities to support and find treatments for Rare Diseases
by Sara McGlocklin In August, 2015, when Marian was born we knew there was something slightly wrong. Her legs were so thin, her cry a little quiet. Her legs and arms hung loosely at her sides when we held her (often recognized as mild “floppy…Continue Reading
By Danna I was 26 in 1992 when I began my painful journey. In college to become a radiology tech, I was working full time and dating. Young and vibrant and my whole life ahead of me. My neck pain and stiffness was unbearable and I…Continue Reading
Don’t miss tomorrow’s segment on Access Health! FH is short for Familial Hypercholesterolemia. It is an inherited disorder that leads to aggressive and premature cardiovascular disease. This includes problems like heart attacks, strokes, and even narrowing of our heart valves. For individuals with FH, although…Continue Reading
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