Global Genes is currently accepting grant applications for our 2022 Financial Advocacy in RARE Patient Impact Grant. This grant opportunity is for Global Advocacy Alliance members (formerly the Foundation Alliance) only and will fund research or the creation of educational resources and programs that help the community better understand and navigate the financial challenges associated with rare or undiagnosed conditions. This grant is open to US and international organizations.
Applications for the 2022 Financial Advocacy in RARE Patient Impact Grant have closed. Winners will be announced the week of June 20th, so check back for updates.
Background
Most individuals have limited exposure to financial and health insurance literacy education in school, college or through work. As a result, many rare disease patients and families find themselves ill-equipped to navigate the health insurance landscape, have conversations with providers about the costs associated with care, afford and transition to independent living, access or obtain financial assistance, stay up to date on tests and treatments, etc. This in turn causes financial hardship and prevents individuals from achieving financial well-being, which can greatly impact one’s care satisfaction, clinical outcomes and quality of life.
Financial literacy in healthcare means the ability to assess, understand, and use financial information which lead to good health and financial outcomes. Financial literacy allows for:
- Identify your needs and understand your treatment options
- Make sound healthcare decisions with available resources
- Manage healthcare expenses
- Pay medical bills
Financial well–being means having financial security and financial freedom of choice, in the present and in the future.
Our 2021 Financial Advocacy in Rare Disease Landscape Assessment and Financial Advocacy Toolkits reveal significant gaps in providing robust and accessible health and financial literacy education and support for patients and caregivers.
Applying for the Grant
Falling under Global Genes’ larger Health Equity Initiative, the 2022 Financial Advocacy Patient Impact Grant program empowers patient advocacy organizations to educate their communities on tackling issues that impact financial well-being and financial literacy for patients.
Through this grant program, it is expected that one component of the proposed project will address the cultural, socioeconomic (income, age, level of education, religion and occupation) and/or linguistic barriers and factors that contribute to the community’s limited access to and understanding of financial literacy and financial well-being. This can be done through research or development of tools, resources and programs that provide guidance and assistance to underserved and underrepresented rare disease patients and families as they encounter financially stressful situations that may impede access to diagnosis, therapy and disease management.
For more information on this grant opportunity, please see the Pre-Reading document.
Applications for the 2022 Financial Advocacy in RARE Patient Impact Grant have closed. Winners will be announced the week of June 20th, so check back for updates.
View the pdf version of the application in full here
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*Please note, foundations must be a member of the Global Advocacy Alliance to be eligible for this grant program. Click here to learn more about our Global Advocacy Alliance and become a member.