The RARE Foundation Alliance holds two types of networking events: RARE Leader Meetups and RARE Lunch & Learn.

RARE Lunch & Learn is a new benefit introduced to Foundation Alliance members this year that will focus on relevant topics identified by feedback from our current members. Lunch & Learns are an additional opportunity to provide support and education to our members.  Sample topics include research poster presentations and how to expand your organization from volunteers to paid staff.

You can sign up to participate in all of these events, or just choose a few topics you’re interested in. If you have any ideas or suggestions of topics to focus on during these meetups, please feel free to forward your ideas to [email protected].

Thank you to all of our Corporate Alliance members for your support of these events.

Not a RARE Foundation Alliance Member? You can learn more and sign up your organization for free today. 

Upcoming RARE Foundation Alliance Events  

RARE Lunch and Learn: Post Pandemic Event Management Considerations 

You are invited to a Zoom meeting.
When: January 19th, 2022 | Time: 10 am ET 

Register here. After registering, you will receive a confirmation email containing information about joining the meeting.

Speaker: Patrice Melluso | Avid Network

PatricePatrice began her career over 20 years ago in the hospitality industry, developing an in-depth industry knowledge and growing her network of insider connections. As a Conference Planning Manager, she combined her detail-oriented professionalism with her passion for travel and began planning and producing over 100 meetings annually for Fortune 500 companies. Patrice’s passion for meeting and event planning and eye for detail have translated into hundreds of successful client programs with budgets into the multi-million dollar range. A true expert in her field, Patrice leads the AVID Vision Team with her extensive knowledge of budget creation and management, audiovisual, menu development, specials events, marketing materials, project management, onsite staff management, and much more.

2021 Past Events

Aug 17: RARE Leader Meetup: How To Write an Effective Grant

Aug 3: RARE Lunch & Learn: Using Social Media For Rare Disease Awareness

July 13: RARE Leader Meetup: Growing Your Organization

June 30: RARE Lunch & Learn: Capacity Building – Moving from volunteers to paid staff