Ways to Engage

Join the Portal

Take the next step to connect with the rare disease community. Create a profile to connect with others, read resources and post to the event hub.

Share Your Story

It’s our experiences that shapes you and inspires others. Share your rare story with us.

Events

RARE on the Road Boston
From: 03/30/2019
08:30 AM - 04:30 PM UTC-12:00
415 Main Street, Cambridge, Massachusetts, United States of America
Details
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Resources

From Molecules to Medicine: Clinical Research
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Building Relationships with Your Representatives
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News

September 26, 2022
Albireo Signs Royalty Deal with $115 Million Upfront Payment
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September 23, 2022
Building a Pipeline of Therapies to Treat Rare Mineralization Disorders
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September 23, 2022
AstraZeneca Will Not Advance Ionis’ Hypercholesterolemia Therapy
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