Ways to Engage

Join the Portal

Take the next step to connect with the rare disease community. Create a profile to connect with others, read resources and post to the event hub.

Share Your Story

It’s our experiences that shapes you and inspires others. Share your rare story with us.

Events

RARE on the Road Boston
From: 03/30/2019
08:30 AM - 04:30 PM UTC-12:00
415 Main Street, Cambridge, Massachusetts, United States of America
Details
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Resources

From Molecules to Medicine: Clinical Research
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Building Relationships with Your Representatives
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News

December 3, 2021
AstraZeneca Nixes $8.1 Billion Deal to Take Swedish Orphan Biovitrum Private
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December 3, 2021
Recordati to Acquire EUSA Pharma for $847 Million to Expand Rare Disease Offerings
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