Ways to Engage

Join the Portal

Take the next step to connect with the rare disease community. Create a profile to connect with others, read resources and post to the event hub.

Share Your Story

It’s our experiences that shapes you and inspires others. Share your rare story with us.

Events

RARE Patient Advocacy Summit
From: 09/27/2021 To: 09/29/2021
All day event
Virtual Event:
Details
RARE on the Road Boston
From: 03/30/2019
08:30 AM - 04:30 PM UTC-12:00
415 Main Street, Cambridge, Massachusetts, United States of America
Details
View More

Resources

We Can’t Do it Alone: Structure and Governance for Research Collaborations
Read More
Rare Therapies: A New Era for Genetic Medicines
Read More
View More

News

July 28, 2021
Deep Genomics Raises $180 Million to Advance Programmable RNA Therapeutics
Read More
July 28, 2021
Aristea Enters into Collaboration with Arena in Neutrophil-Mediated Diseases and Raises $63 Million
Read More
July 28, 2021
Bluebird Bio Forms Strategic Alliance with Resilience to Develop Next Generation Cell Therapies
Read More
View More
X