Ways to Engage

Join the Portal

Take the next step to connect with the rare disease community. Create a profile to connect with others, read resources and post to the event hub.

Share Your Story

It’s our experiences that shapes you and inspires others. Share your rare story with us.

Events

RARE Patient Advocacy Summit
From: 09/21/2020 To: 09/23/2020
08:00 AM - 05:00 PM UTC-12:00
1380 Harbor Island Drive, San Diego, California, United States of America
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Resources

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News

November 21, 2019
Healx Launches Rare Treatment Accelerator
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November 21, 2019
CRISPR Therapeutics Initiates $275 Million Public Offering
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November 21, 2019
FDA Grants Newron Rare Pediatric Disease Designation for Sarizotan in Rett Syndrome
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November 21, 2019
Rare Leader: Rich Horgan, Founder and President, Cure Rare Disease
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November 21, 2019
FDA Approves Alnylam’s RNAi Drug Givlaari for AHP Attacks
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November 20, 2019
Reata Raises $505 Million to Advance Rare Disease Drugs
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