Ways to Engage

Join the Portal

Take the next step to connect with the rare disease community. Create a profile to connect with others, read resources and post to the event hub.

Share Your Story

It’s our experiences that shapes you and inspires others. Share your rare story with us.

Events

RARE Patient Advocacy Summit
From: 09/18/2019 To: 09/20/2019
08:00 AM - 05:00 PM UTC-12:00
1380 Harbor Island Drive, San Diego, California, United States of America
Details
RARE on the Road Boston
From: 03/30/2019
08:30 AM - 04:30 PM UTC-12:00
415 Main Street, Cambridge, Massachusetts, United States of America
Details
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Resources

Building Relationships with Your Representatives
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From Molecules to Medicine: Clinical Research
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News

January 31, 2019
Undocumented former Trump workers lobby Congress – The Courier-Express
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January 31, 2019
Balanced Diet Linked To Lower Risk Of High Blood Pressure During Pregnancy –…
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January 31, 2019
Global Anal Fistula Treatment Market Analysis 2018 by Technological Progress, Regional Outlook...
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