Global Genes Team

Global Genes™ is a 501(c)(3) non-profit corporation. Our Leadership Team, Board of Directors and Advisory Teams are committed to programs centered on our core mission of working to eliminate the challenges of rare disease.

Global Genes™ Team
 Learn more about the Global Genes Team by clicking their photos
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Nicole Boice Angie Rowe  Kym Kilbourne
Founder & CEO Chief Operating Officer VP, Patient Advocacy
amanda-knitter-headshot amy-headshot-sized Alex Scholt
Amanda Knitter Amy Grover Alex Schlott

Director, Patient 

Director, Operations  Director, Event
Advocacy Operations
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Kathy O’Connor Lisa James Jaymie Rodems
Manager, Strategic Manager, Technology Manager, Marketing &
 Alliances Communications
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Carrie Ostrea  Ilana Jacqueline Stephanie Gandomi
Manager, Advocacy Managing Editor, Genetic Counseling
RARE DAILY Advisor & Consultant
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Nikki Berry   Lisa Schill  Brynn Dickson
Coordinator, Design Advocacy Ambassador Administrative Assistant