Bracelet Recipient, Lisa Auerbach Shares Hope While Battling Ehlers-Danlos Syndrome (EDS)


Lisa Auerbach cherishes the Hope bracelet she recently received.  Lisa is battling Ehlers-Danlos Syndrome(EDS), a connective tissue disorder which affects every system in the body.   Lisa’s symptoms include dislocating joints, Postural Orthestatic Tachycardia (POTS), severe headaches and pain.  She will most likely need significant neck surgery in the near future to correct the instability.  Despite Lisa’s battle with EDS, she is making bracelets to show her support for people affected by rare disease and encouraging others to do the same.

I decided that it would be nice to be involved in this wonderful project and make some bracelets to submit. I told one of my co-workers about “7000 Bracelets” and she happily made three. Hopefully, more of my talented friends will submit additional bracelets too.

It is about sharing hope, and as a recipient, I am proud to spread more hope to all of us with rare disorders and I appreciate the opportunity to do so.  Thanks!   – Lisa Auerbach

To learn more about Ehlers-Danlos Syndrome (EDS) visit EDNF.org.

Thank you, Lisa!  We are inspired by your strength and appreciate your support!

Filed Under: Uncategorized

Tags:, , , ,

Global Genes Comments

  1. Heather Earley says:

    Hi Natalee! The best individual to speak to about our 7000 Bracelets for Hope program is Lisa James:
    Lisa James
    Manager, Community Development
    Global Genes | RARE Team
    O: 949.248.7273
    lisaj@rareproject.org

    Please feel free to contact Lisa for further information! Have a wonderful holiday!!!

    – The Global Genes Team

  2. Where can you purchase the bracelets at?

Speak Your Mind

*

be-a-guest-blogger

Follow us on Twitter

Upcoming Events

Sep 14

Rare Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

Rare Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

Rare Patient Advocacy Summit

September 15 @ 8:00 am - 4:00 pm
Sep 15

Community Nominated Ceremony and Reception

September 15 @ 4:30 pm - 9:00 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

Rare Day of Beauty

September 16 @ 12:30 pm - 4:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm