Upcoming Events

Racefor7 USA: A 7 Km walk or run to raise awareness about rare diseases – Fremont, CA
02/24/2019
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Racefor7 USA: A 7 Km walk or run to raise awareness about rare diseases – Dallas, TX
02/24/2019
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Racefor7 USA: A 7 Km walk or run to raise awareness about rare diseases – Greenville, SC
02/24/2019
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Racefor7 USA: A 7 Km walk / run to raise awareness about rare diseases – Washington DC
02/28/2019
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New Hope Run Club presents…….Zebra 5K – Virtual and in Person
02/26/2019 - 02/28/2019
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RARE on the Road Boston
03/30/2019 12:01pm 05:01pm UTC-12:00
1201 Nice BLVD, Suite 1212, City Of the Future, NC 12000
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XLH Community Connections Day – Ohio
03/30/2019 UTC-06:00
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Past Events

2nd Annual CRPS Convention
11/02/2019 - 02/03/2019
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UPMC Children’s Hospital of Pittsburgh, Center for Rare Disease Therapy Webinar Series
UTC-06:00
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Cure VCP Disease Patient & Caregiver Conference
UTC-06:00
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