Upcoming Events

11th International Prader-Willi Syndrome Organisation Conference 2022
07/06/2022 - 07/10/2022
Learn More
2022 SPF Annual Conference For Hereditary Spastic Paraplegia and Primary Lateral Sclerosis
07/22/2022 - 07/25/2022
Learn More
2022 FARF Scientific Symposium
09/08/2022 - 09/11/2022
Learn More
Retreat for Adults with FA
09/08/2022 - 09/11/2022
Learn More
RARE Champions of Hope Celebration
09/13/2022 UTC-08:00
Learn More
2022 RARE Patient Advocacy Summit
09/12/2022 - 09/14/2022
1201 Nice BLVD, Suite 1212, City Of the Future, NC 12000
Learn More
Load More

Past Events

Rarely Told Stories Workshop 2
06/29/2022 12:01pm 05:01pm UTC-04:00
1201 Nice BLVD, Suite 1212, City Of the Future, NC 12000
Learn More
ALF Rare Disease Summit
06/28/2022 - 06/29/2022
Learn More
Virtual Silent Auction Fundraiser
06/17/2022 - 06/26/2022
Learn More
Sickle Cell Trait 360 (SCT360): Full Sickle Hemoglobinopathy Spectrum Education CME Conference
06/17/2022
Learn More
Rare Drug Development Symposium 2022: Disruptive Innovations in Rare Disease Research
06/08/2022 - 06/10/2022
1201 Nice BLVD, Suite 1212, City Of the Future, NC 12000
Learn More
2nd Annual Gene Therapy Patient Engagement Summit
06/07/2022 - 06/09/2022
Learn More
Load More