Upcoming Events

#CaringForRare Bicycling Event Weekend
09/14/2019 - 09/15/2019
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RARE Patient Advocacy Summit
09/18/2019 - 09/20/2019
1201 Nice BLVD, Suite 1212, City Of the Future, NC 12000
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RAREsummit19 – Patients as Partners: Empower Patients Influencing Change
09/23/2019 UTC+01:00
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The Manchester Rare Disease Showcase
10/08/2019 UTC-06:00
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XLH Community Connections Day
10/12/2019 UTC-06:00
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Living with Cardiomyopathy Family Conference
10/11/2019 - 10/12/2019
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Accelerating Towards A Cure
10/19/2019 - 10/20/2019
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2nd Annual CRPS Convention
11/02/2019 - 02/03/2019
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Second Annual CRPS Convention
11/02/2019 - 11/03/2019
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Disorder: The Rare Disease Film Festival
11/09/2019 - 11/10/2019
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Past Events

KAND Family and Scientific Engagement Conference
08/16/2019 - 08/18/2019
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The Cambridge Rare Disease Showcase
08/08/2019 UTC 00:00
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Third Annual CRPS Awareness Game & Fundraiser at Dodger Stadium
08/03/2019 UTC-06:00
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Make Your Voice Heard at ICER Meeting on Duchenne Muscular Dystrophy
07/25/2019 UTC-04:00
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2019 MTM-CNM Family Conference
07/19/2019 - 07/21/2019
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Patient Forum: Understanding Hairy Cell Leukemia
07/17/2019 UTC-05:00
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RARE on the Road Sioux Falls
07/13/2019 12:01pm 05:01pm UTC-12:00
1201 Nice BLVD, Suite 1212, City Of the Future, NC 12000
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Rare Webinar: Thyroid Eye Disease Awareness and Education
07/09/2019 UTC-07:00
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The ABC’s of Progressive Familial Intrahepatic Cholestasis
07/09/2019 UTC-05:00
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STXBP1 Investigator and Family Meeting (Family Only)
06/22/2019
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2019 Annual Conference of the Spastic Paraplegia Foundation
06/21/2019 - 06/22/2019
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