RARECast: Understanding the Rare Disease Caregiver

September 18, 2015

Caregivers, an often overlooked part of the healthcare continuum, play a critical role in the world of rare diseases. But with this role (usually taken on by family members) comes physical, emotional, and financial stress. We spoke to Grace Whiting, Director of Strategic Partnerships for the National Alliance for Caregiving Her organization studies the needs of caregivers, the issues they face, and the policy changes needed to better support them.

Join Grace next week during our RARE Patient advocacy summit as she speaks on the topic of caregiving and works to educate attendees on the complicated and careful world of caring for those with rare diseases. You can still register for our Patient Advocacy Summit here. 

RARECast is a weekly series by Daniel S. Levine. Levine is an award-winning business journalist who has reported on the life sciences, economic development, and business policy issues throughout his 25-year career. He founded Levine Media Group in 2013, which produces The Bio Report and RARECast podcasts. Read his full bio here. 

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