Over 600 patients, advocacy leaders, biotech and pharmaceutical executives, healthcare philanthropists and celebrities to gather in Huntington Beach for event honoring achievements in rare disease
ALISO VIEJO, Calif., September 4, 2014 – Global Genes™ announced today platinum recording artist Kris Allen, best known for winning season eight of ‘American Idol,’ singer/songwriter Jessi Malay and dance team, Culture Shock LA will perform at the 3rd Annual Tribute to Champions of Hope™ Gala on Saturday, September 13, 2014, at the Hyatt Regency Resort & Spa in Huntington Beach, CA.
The Tribute to Champions of Hope Gala celebrates the pioneering achievements of individuals and corporations in the rare and genetic disease community who are leading the fight against rare disease. This event continues to raise awareness for the over 7,000 different types of rare diseases that affect roughly 30 million Americans and approximately 350 million people worldwide. Proceeds from the evening will benefit Global Genes’ educational programs, as well as the innovative Undiagnosed Patient Program, which aims to support direct funding for complex diagnostics, including genome sequencing for patients struggling to find a diagnosis.
The evening will be a star-studded event with performances by platinum recording artist Kris Allen, singer/songwriter Jessi Malay and American dance company, Culture Shock LA. Many celebrity guests are also expected to take part in the event including Kit Hoover (Access Hollywood LIVE), Actor/Producer and Make-A-Wish® America supporter, Dean Cain (Lois & Clark: The New Adventures of Superman), Liz Hernandez (Access Hollywood), and Eileen Grubba (Hung, Bones).
“We are fortunate that the rare disease community looks forward to participating in this annual Tribute,” said Nicole Boice, Founder & CEO of Global Genes, “It continues to provide an opportunity for attendees to recognize their peers for their dedication, commitment and innovative spirit that is helping achieve our common goal of eliminating the challenges of rare disease globally. We are honored and humbled to be in the company of these true Champions of Hope.”
Sponsors of the 2014 Tribute to Champions of Hope Gala include: Walgreens, Alexion, Retrophin, Sciensus, Genzyme, Shire, Pfizer, Vanda Pharmaceuticals, Vidara Therapeutics, Biomarin, Recordati Rare Diseases, Novartis, Bio, Goldman Sachs, Siren Interactive, GlaxoSmithKline, Hyperion Therapeutics, Boehringer Ingleheim, Raptor Pharmaceutical Corp., AstraZeneca, Jazz Pharmaceuticals, Idis, Amicus Therapeutics, Auxilium, NEA, Cincinnati Children’s, Lumena Pharmaceuticals, Ambry Genetics, illumina, Sigma-Tau Pharmaceuticals, Rocket Science, Aegerion Pharmaceuticals, Audentes, Sarepta Therapeutics, Synageva, Clementia, Watson Land Company, Print Technology Solutions and PM Group.
For more information about the 2014 Tribute to Champions of Hope Gala, please visit: https://globalgenes.org/events
For more information about Kris Allen, please visit:
For more information about Jessi Malay, please visit:
For more information on Culture Shock Los Angeles, please visit:
About Global Genes – Allies in Rare Disease
Global Genes™ is a leading rare disease patient advocacy organization. The group’s mission is to eliminate the challenges of rare disease, by providing patients with educational tools, building awareness, providing critical connections to people and resources, and through investment in technologies that will positively impact affected patients and families. Recognized worldwide by the Blue Denim Genes Ribbon™, Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 7,000 rare and genetic diseases that impact approximately 30 million Americans and over 350 million people worldwide.
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Contact: Christina Fumia