Press Releases

2016-summit-logo
Global Genes, PlatformQ Health to Launch RareUniversity.com with Live Coverage from the 2016 RARE Patient Advocacy Summit
ALISO VIEJO, CALIFORNIA (PRWEB) SEPTEMBER 14, 2016 Global Genes and PlatformQ Health are pleased to announce that the sold-out… Continue Reading
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Global Genes Announces Actors, Pop Stars, and Special Performances For the Fifth Annual Tribute to Champions of Hope
Finalists from NBC’s The Voice, Ed O’Neill, Taylor Hicks, Madison McLaughlin, and More Support Rare Disease ALISO VIEJO, Calif. —… Continue Reading
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Global Genes Provides Over $100,000 in Scholarships
Global Genes, the leading global advocacy non-profit organization for patients and families fighting rare and genetic diseases, today… Continue Reading
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2016 RARE Champion Of Hope Honorees
Over 350 individuals and organizations worldwide were nominated by their peers for a RARE Champion of Hope award for their notable efforts… Continue Reading
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Announcing the Recipients for Our 5th Annual Tribute to Champions of Hope!
Philip Reilly To Receive Henri Termeer Lifetime Achievement Award   September 22-24 in Huntington Beach, CA   ALISO VIEJO, Calif. — July… Continue Reading
FDA CARE
Introducing the Path To Hope Campaign in Response to FDA Decision on Eteplirsen
The decision made by the FDA Advisory Committee does not only ​impact ​the affected Duchenne families,​ but ​the​ entire rare… Continue Reading
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Rare Disease Report Interviews Wendy White: In Praise of Global Genes
Rare Disease Report recently interviewed Wendy White on the core culture of Global Genes. (Thanks to RareDR.com for this video) White called… Continue Reading
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