Press Releases

Global Genes® to Host 6th Annual Rare Patient Advocacy Summit September 14 – 15, 2017, Hotel Irvine, Irvine, California
On September 14-15, 2017, more than 700 rare disease stakeholders from around the globe will gather at Hotel Irvine in Irvine,… Continue Reading
Global Genes® to Convene RARE Partnering and Investor Forum to Accelerate Drug Development for Rare Diseases
[Aliso Viejo, CA] May 19, 2017 – Global Genes®, a leading rare disease patient advocacy organization, will host the inaugural RARE… Continue Reading
Global Genes Awards 14 Patient Organizations through RARE Patient Impact Grant Program
 Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2017 RARE Patient Impact Grant recipients.… Continue Reading
Global Genes® and Horizon Pharma plc Partner to Offer Nephropathic Cystinosis Scholarships
Scholarships Provide Opportunity for People with Nephropathic Cystinosis to Pursue Educational and Career Goals. Global Genes® and Horizon… Continue Reading
Rare Disease Companies, Investors, Patient Groups to Convene in Union Square During JP Morgan Healthcare Conference for RARE in the Square
  Unique venue features rare disease innovation, collaboration, networking   ALISO VIEJO, Calif. — December 13, 2016 — Global… Continue Reading
Global Genes® Expands Board of Directors & Medical and Scientific Advisory Board To Amplify Efforts for Rare Disease Community
ALISO VIEJO, Calif. — December 8, 2016 — Global Genes®, one of the world’s leading nonprofit rare disease patient advocacy… Continue Reading
Global Genes Announces Winners of the David R. Cox Prize for Rare Compassion
New York University School of Medicine Student Wins Top Honors ALISO VIEJO, Calif. — November 3, 2016 — Global Genes™ is proud to… Continue Reading
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