Press Releases

Global Genes® Elevates Operational Leaders, Refines Executive Role to Prepare for New Initiatives in Support of the Rare Disease Community
Media Contact: Tori Elder, The ACE Agency (702) 413-8625, tori@theaceagency.com   ALISO VIEJO, Calif. — July 2, 2018 — Global… Continue Reading
Global Genes® to Host 7th Annual Rare Patient Advocacy Summit October 3-4
ALISO VIEJO, Calif. – June 28, 2017 – More than 800 rare disease patients and advocates from around the globe will gather at Hotel… Continue Reading
Global Genes to Host RARE in the SQUARE January 8-10, 2018, During J.P. Morgan Healthcare Conference
Global Genes® to Host RARE in the SQUARE January 8-10, 2018, During J.P. Morgan Healthcare Conference RARE Disease Innovators, Investors,… Continue Reading
Horizon Pharma plc Partners with Global Genes® to Unite the Rare Disease Community at the BIO International Convention
Text the Word “RARE” to 565-12 to Generate a Donation to Global Genes DUBLIN, Ireland, June 20, 2017 (GLOBE NEWSWIRE) — Horizon… Continue Reading
Global Genes® to Host 6th Annual Rare Patient Advocacy Summit September 14 – 15, 2017, Hotel Irvine, Irvine, California
On September 14-15, 2017, more than 700 rare disease stakeholders from around the globe will gather at Hotel Irvine in Irvine,… Continue Reading
Global Genes® to Convene RARE Partnering and Investor Forum to Accelerate Drug Development for Rare Diseases
[Aliso Viejo, CA] May 19, 2017 – Global Genes®, a leading rare disease patient advocacy organization, will host the inaugural RARE… Continue Reading
Global Genes Awards 14 Patient Organizations through RARE Patient Impact Grant Program
 Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2017 RARE Patient Impact Grant recipients.… Continue Reading