Press Releases

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Announcing the Recipients for Our 5th Annual Tribute to Champions of Hope!
Philip Reilly To Receive Henri Termeer Lifetime Achievement Award   September 22-24 in Huntington Beach, CA   ALISO VIEJO, Calif. — July… Continue Reading
FDA CARE
Introducing the Path To Hope Campaign in Response to FDA Decision on Eteplirsen
The decision made by the FDA Advisory Committee does not only ​impact ​the affected Duchenne families,​ but ​the​ entire rare… Continue Reading
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Rare Disease Report Interviews Wendy White: In Praise of Global Genes
Rare Disease Report recently interviewed Wendy White on the core culture of Global Genes. (Thanks to RareDR.com for this video) White called… Continue Reading
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Global Genes Announces Winners of the David R. Cox Prize for Rare Compassion
Student from Baylor College of Medicine Wins Top Honors ALISO VIEJO, Calif. — October 8, 2015 — Global GenesTM is proud to partner with… Continue Reading
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Star Studded 4th Annual RARE Tribute to Champions of Hope & RARE Patient Advocacy Summit raise over $1.2 Million
Global Genes™, a leading global rare disease patient advocacy organization, hosted the fourth annual RARE Tribute to Champions of Hope on… Continue Reading
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16 Semi-Finalists Chosen for David R. Cox Prize for Rare Compassion
The top sixteen semi-finalists  have been chosen for the David R. Cox Prize for Rare Compassion! After an exciting year where much interest… Continue Reading
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Global Genes Announces Celebrities, Iconic Athletes and Pop Stars Joining the Fourth Annual RARE Tribute to Champions of Hope Gala
ALISO VIEJO, Calif. — August 25, 2015 — Global Genes™ is pleased to announce celebrities, iconic athletes and pop stars that will… Continue Reading