Press Releases

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Hopemania Coming to Patterson on June 14th, Proceeds to Benefit Families of Those with Rare Diseases
What could a five-month-old girl, a handful of costumed wrestlers and the plight of the rare disease community have in common? Attendees of… Continue Reading
21st Century Cures
A Message From Global Genes About 21st Century Cures
Yesterday’s important milestone gave rare disease patient advocates a reason to celebrate.  The House Energy and Commerce Committee… Continue Reading
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Global Genes™ Appoints New COO, VP of Patient Advocacy and VP of Strategic Alliances
Global Genes™, a leading non-profit rare disease patient advocacy group, today announced that three new hires have joined the company’s… Continue Reading
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Global Genes™ Kicks Off #CareAboutRare Campaign for World Rare Disease Day 2015
ALISO VIEJO, Calif., Feb. 12, 2015–Global Genes, a leading patient advocacy organization with the mission to eliminate the challenges of… Continue Reading
UK Genetic Disorders Leadership Symposium
Genetic Disorders UK and Global Genes Collaborate on the First Event for Leaders of Rare Genetic Disorder Charities and Support Groups
Global Genes, a leading rare disease patient advocacy organization based in the USA, has partnered with Genetic Disorders UK (GDUK), the UK… Continue Reading
Make-A-Wish America
Make-A-Wish® and Global Genes™ Work Together to Make a Difference
PHOENIX, AZ–(Marketwired – January 13, 2015) – Since granting its first wish in 1980, Make-A-Wish® has blossomed into one of the… Continue Reading
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Global Genes Partners with Genetic Disorders UK to Empower Individuals and Families affected by Rare Genetic Disorders Globally
There is great flux in all aspects of the lives of families affected by a rare genetic disorders in the UK. The NHS is undergoing major… Continue Reading