Press Releases

2016 RARE Champion Of Hope Honorees
Over 350 individuals and organizations worldwide were nominated by their peers for a RARE Champion of Hope award for their notable efforts… Continue Reading
Announcing the Recipients for Our 5th Annual Tribute to Champions of Hope!
Philip Reilly To Receive Henri Termeer Lifetime Achievement Award   September 22-24 in Huntington Beach, CA   ALISO VIEJO, Calif. — July… Continue Reading
Introducing the Path To Hope Campaign in Response to FDA Decision on Eteplirsen
The decision made by the FDA Advisory Committee does not only ​impact ​the affected Duchenne families,​ but ​the​ entire rare… Continue Reading
Rare Disease Report Interviews Wendy White: In Praise of Global Genes
Rare Disease Report recently interviewed Wendy White on the core culture of Global Genes. (Thanks to for this video) White called… Continue Reading
Global Genes Announces Winners of the David R. Cox Prize for Rare Compassion
Student from Baylor College of Medicine Wins Top Honors ALISO VIEJO, Calif. — October 8, 2015 — Global GenesTM is proud to partner with… Continue Reading
Star Studded 4th Annual RARE Tribute to Champions of Hope & RARE Patient Advocacy Summit raise over $1.2 Million
Global Genes™, a leading global rare disease patient advocacy organization, hosted the fourth annual RARE Tribute to Champions of Hope on… Continue Reading
16 Semi-Finalists Chosen for David R. Cox Prize for Rare Compassion
The top sixteen semi-finalists  have been chosen for the David R. Cox Prize for Rare Compassion! After an exciting year where much interest… Continue Reading