Press Releases

Global Genes™ Kicks Off #CareAboutRare Campaign for World Rare Disease Day 2015
ALISO VIEJO, Calif., Feb. 12, 2015–Global Genes, a leading patient advocacy organization with the mission to eliminate the challenges of… Continue Reading
Genetic Disorders UK and Global Genes Collaborate on the First Event for Leaders of Rare Genetic Disorder Charities and Support Groups
Global Genes, a leading rare disease patient advocacy organization based in the USA, has partnered with Genetic Disorders UK (GDUK), the UK… Continue Reading
Make-A-Wish® and Global Genes™ Work Together to Make a Difference
PHOENIX, AZ–(Marketwired – January 13, 2015) – Since granting its first wish in 1980, Make-A-Wish® has blossomed into one of the… Continue Reading
Global Genes Partners with Genetic Disorders UK to Empower Individuals and Families affected by Rare Genetic Disorders Globally
There is great flux in all aspects of the lives of families affected by a rare genetic disorders in the UK. The NHS is undergoing major… Continue Reading
Global Genes Announces Formation of Medical Scientific Advisory Board—Adds New Members to Board of Directors
ALISO VIEJO, Calif. — November 24, 2014 — Global Genes™ announced today the formation of an inaugural leadership team, the Medical and… Continue Reading
Global Genes™ Launches RARE Daily, Innovative Online News Magazine
Global Genes’ RARE Blog has been reimagined to bring more opportunities for rare disease patients to learn and stay informed on important… Continue Reading
Platinum Recording Artist and American Idol Season 8 Winner, Kris Allen, Performs At Global Genes’ “Tribute to Champions of Hope” Gala Access Hollywood LIVE co-host Kit Hoover, along with Access Hollywood co-host Liz Hernandez, actively participate
It is estimated that it takes an average of five to seven years for a patient suffering from a rare disease to receive a proper diagnosis,… Continue Reading