Press Releases

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New Educational Toolkits from Global Genes Demystify Rare Community’s Biggest Problems
Ask any parent to whip out their highlighted copy of the latest edition of Parenting a Child with a Life-Limiting Illness and you’ll be… Continue Reading
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Rare Disease: A Sense of Community– Global Genes Founder and President Nicole Boice
The rare disease community looks to the general public for strength and support.Awareness is key to the future success of rare disease… Continue Reading
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Siren Interactive Brings Together Global Genes, MIT and Bestselling Author and Geneticist to Hack a Diagnosis Tool for Rare Diseases
MIT’s H@cking Medicine Program Will Deliver Technology Platform for Global Genes™ to Provide Novel Tools to Help Physicians Speed… Continue Reading
Global Genes Partners With SWAN USA To Help Undiagnosed Rare Disease Patients Seek A Medical Diagnosis Through Free Whole Exome Sequencing Program
GLOBAL GENES PARTNERS WITH SWAN USA TO HELP UNDIAGNOSED RARE DISEASE PATIENTS SEEK A MEDICAL DIAGNOSIS THROUGH FREE WHOLE EXOME SEQUENCING… Continue Reading
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Global Genes Blog Editor Weighs in for HuffPo: How Do You Deal With Relatives Who Don’t Understand Your Chronic Illness?
I don’t generally go into the long and sordid story of how me and the majority of my family get on with my chronic illness. But what… Continue Reading
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Global Genes| RARE Project Honors 7-Year-old Philanthropist
Global Genes| RARE Project honors 7-Year-old Philanthropist Non-profit hosts celebrity Gala and will present RARE Champion award to… Continue Reading
2013 Emmy Nominated Recording Artist, Andrew McMahon, To Perform At Global Genes | RARE Project’s Sold Out Tribute to Champions of Hope™ Benefit
Over 500+ Patients, Advocacy Leaders, Biotech and Pharmaceutical Executives, Healthcare Philanthropists and Celebrities to Gather… Continue Reading