Press Releases

Platinum Recording Artist and American Idol Season 8 Winner, Kris Allen, Performs At Global Genes’ “Tribute to Champions of Hope” Gala Access Hollywood LIVE co-host Kit Hoover, along with Access Hollywood co-host Liz Hernandez, actively participate
It is estimated that it takes an average of five to seven years for a patient suffering from a rare disease to receive a proper diagnosis,… Continue Reading
Attended the 2014 Global Genes Summit and Gala? Share Your Story
Each year Global Genes puts together a two day Patient Advocacy Summit and our Tribute to Champions of Hope Gala. For the Global Genes team… Continue Reading
‘American Idol’ Winner, Singer/Songwriter Kris Allen to Perform at 2014 Global Genes Tribute to Champions of Hope Gala
Over 600 patients, advocacy leaders, biotech and pharmaceutical executives, healthcare philanthropists and celebrities to gather… Continue Reading
Global Genes Hosts Third Annual Tribute to Champions of Hope Gala
ALISO VIEJO, Calif.–(BUSINESS WIRE)–On September 13th, 2014, over 600 attendees will gather at the Hyatt Regency Resort and Spa in… Continue Reading
GLOBAL GENES™ Launches “RARE Toolkits” as Premier Educational Resource for the Rare Disease Community
Series of RARE Disease Toolkits Enable Advocates, Patients and Caregivers to Empower Themselves and Inspire Others With 1 in 10 Americans… Continue Reading
New Educational Toolkits from Global Genes Demystify Rare Community’s Biggest Problems
Ask any parent to whip out their highlighted copy of the latest edition of Parenting a Child with a Life-Limiting Illness and you’ll be… Continue Reading
Rare Disease: A Sense of Community– Global Genes Founder and President Nicole Boice
The rare disease community looks to the general public for strength and support.Awareness is key to the future success of rare disease… Continue Reading