Press Releases

Global Genes Partners with Genetic Disorders UK to Empower Individuals and Families affected by Rare Genetic Disorders Globally
There is great flux in all aspects of the lives of families affected by a rare genetic disorders in the UK. The NHS is undergoing major… Continue Reading
Global Genes Announces Formation of Medical Scientific Advisory Board—Adds New Members to Board of Directors
ALISO VIEJO, Calif. — November 24, 2014 — Global Genes™ announced today the formation of an inaugural leadership team, the Medical and… Continue Reading
Global Genes™ Launches RARE Daily, Innovative Online News Magazine
Global Genes’ RARE Blog has been reimagined to bring more opportunities for rare disease patients to learn and stay informed on important… Continue Reading
Platinum Recording Artist and American Idol Season 8 Winner, Kris Allen, Performs At Global Genes’ “Tribute to Champions of Hope” Gala Access Hollywood LIVE co-host Kit Hoover, along with Access Hollywood co-host Liz Hernandez, actively participate
It is estimated that it takes an average of five to seven years for a patient suffering from a rare disease to receive a proper diagnosis,… Continue Reading
Attended the 2014 Global Genes Summit and Gala? Share Your Story
Each year Global Genes puts together a two day Patient Advocacy Summit and our Tribute to Champions of Hope Gala. For the Global Genes team… Continue Reading
‘American Idol’ Winner, Singer/Songwriter Kris Allen to Perform at 2014 Global Genes Tribute to Champions of Hope Gala
Over 600 patients, advocacy leaders, biotech and pharmaceutical executives, healthcare philanthropists and celebrities to gather… Continue Reading
Global Genes Hosts Third Annual Tribute to Champions of Hope Gala
ALISO VIEJO, Calif.–(BUSINESS WIRE)–On September 13th, 2014, over 600 attendees will gather at the Hyatt Regency Resort and Spa in… Continue Reading