Numbers
RARE Disease Facts
You are not alone. These RARE facts show the impact of rare disease. Share these statistics with your communities to let them know that RARE really is everywhere.
RARE Diseases Impact More People Than
Cancer and AIDS Combined
1 in 10
People are Affected by Rare Disease
1 in 2
Rare Diseases Don’t Have a Foundation or Research Support Groups
1 of 2
Patients Diagnosed with a Rare Disease is a Child
3 of 10
Children with a Rare Disease Won’t Live to See Their 5th Birthday
400
Million People Suffer From a Rare Disease Globally
8 in 10
Rare Diseases are Genetic
4.8 Years
The Average Time it Takes for Rare Patients to Receive an Accurate Diagnosis
95%
of Rare Diseases Lack an FDA Approved Treatment
10,000+
Distinct types of Rare and Genetic Diseases