This bootcamp is designed for patients and advocates who have started funding rare disease research and are looking to better coordinate and build structure around their efforts. The RARE Entrepreneur Bootcamp will begin at 9 am Wednesday, September 18, 2019. You must register and attend the RARE Patient Advocacy Summit in order to be eligible to attend the bootcamp.

If you can answer “yes” to these three questions, this bootcamp is designed to help you grow your research and therapy development efforts with the focus of an entrepreneur.

  1. Are you actively funding rare disease research?
  2. Do you have a plan to take the research to therapeutic discovery and development?
  3. Are you considering creating a company or funding a company as a venture philanthropy effort to begin the therapeutic development process?



There is limited space for this hands-on and in-depth day of learning. Patients and advocates interested in attending must submit a RARE Entrepreneur Bootcamp application. Attendees will be required to participate in the full day of the bootcamp. This bootcamp will take place during the RARE Patient Advocacy Summit.

If you have any questions, please email