Upcoming Events on the Rare Calendar

January 25 to March 31
The Alagille Syndrome Alliance, a nonprofit organization dedicated to furthering awareness and understanding of Alagille Syndrome, has opened applications for the Alaina Kaitlyn Hahn Celebratory Scholarship for the 2018-2019 academic year. The Alaina Kaitlyn Hahn Celebratory Scholarship funds the education of high school graduates or GED credential recipients with ALGS who are entering or enrolled in an accredited U.S. university, college, or vocational school and choose to pursue higher education in the human biological, medical, or health sciences. This is a $500 scholarship for a single year and is renewable one time, subject to open competition with other applicants, for a total possible award of $1,000. Application materials are available on the ALGSA website at http://www.alagille.org or by request via email to alagille@alagille.org. The application deadline is March 31, 2018.


May 19, 2018
The 2018 Rare Patient Advocacy Symposiuma partnership between Global Genes and the Penn Medicine Orphan Disease Center, will be held in Philadelphia. The Symposium has been developed for patient advocates to learn, connect and be inspired.  Attendees do not need to be affiliated with the MDBR and all rare patient, advocates and stakeholders are welcome to attend. More information can be found on the Global Genes website.

June 11-12, 2018 
4th World Congress on Rare Diseases and Orphan Drugs
Rare Diseases Conference 2018 serve as a bridge between researchers from academia and health care centers enhanced by its well organized scientific sessions, plenary lectures, poster presentations, world class exhibitions, diverse symposiums, highly enriched workshops and B2B meetings and it will continue the tradition of being an important focal point of the Rare Diseases scientific community and an excellent forum for academics and professionals to present their results and discuss advancements in a wide range of areas of Rare Diseases. The conference will be held in Dublin, Ireland.

More information can be found at the conference website.

If you have an event you’d like added to this calendar, send us an email

This page was last updated January 17, 2018


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