Upcoming Events on the Rare Calendar

December 14
Zoe’s Story will hold a Writing Warriors Workshop December 14, 2018 at 9 p.m. EST/8 p.m. CST. This workshop is a family journaling sesssion for all warriors ages 7 and up, caregivers, and siblings to learn how to use journaling as an outlet in dealing with the emotional stress of CRMO and other rare diseases. For more information or to register, visit the event page.

January 7-9
Global Genes will host the third annual RARE in the Square from 8 a.m. to 5 p.m. January 7-9, 2019 in San Francisco’s Union Square to coincide with J.P. Morgan’s annual Healthcare Conference. RARE in the Square is a unique networking event that assembles investors, industry partners, patient community leaders, and influencers. It offers a forum for rare disease stakeholders to gather in a distinctive and convenient location to connect, network, and unwind, all at the epicenter of the J.P. Morgan Healthcare Conference. More information can be found on the event webpage.

January 22-23
Expanded Access 2.0, the Second Annual National Forum on Pre-Approval Access, will be held at the National Press Club in Washington, D.C. on January 22 and 23. The forum will explore the integration of treatment-use trials into the clinical development of new therapeutics for serious diseases. To view the agenda or register, go to the conference website.

June 21-23
Living Rare, Living Stronger
NORD will bring the rare disease community together June 21 to June 23 in Houston, Texas for the 2019 Living Rare, Living Stronger NORD Patient & Family Forum. During this event, the rare community will come together with physicians, medical students, and allied health professionals for a program of learning, sharing and connection – in a fun atmosphere of support and understanding. For more information, visit the event webpage.

If you have an event you’d like added to this calendar, send us an email

This page was last updated October 29, 2018


Filed Under: Calendar, Get Involved, Rare Community


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