Upcoming Events on the Rare Calendar

February 9-10, 2018
The Boler-Parseghian Center for Rare & Neglected Diseases at the University of Notre Dame holds its annual Rare Disease Day Conference on the campus at Jordan Hall. Rob Long, director of Uplifting Athletes and Nicole Boice, founder and CEO of Global Genes, will serve as keynote speakers. The conference will feature a research symposium, exhibitor booths, posters, and rare disease patients and researchers. More information can be found on The Boler-Parseghian Center for Rare & Neglected Diseases website

February 27, 2018
Findacure 2018 Drug Repurposing for Rare Diseases Conference
The annual conference will be held at the Royal College of Nursing in London. It brings together patient groups, clinicians, researchers, and life science professionals, to discuss the latest developments in drug repurposing, and its role in the future of rare disease treatment.

Alongside celebrating international Rare Disease Day 2018, delegates will hear examples of excellent practice of drug repurposing in rare diseases, and make connections with rare advocates in and outside of their respective fields. Early bird registration is available through December 11.
To register, go to https://www.eventbrite.co.uk/e/drug-repurposing-for-rare-diseases-conference-2018-tickets-39257798131

February 28, 2018
Global Genes and the Festival of Children Foundation will be hosting a RARE Carousel of Possible Dreams Celebration and Awareness Event on February 28, 2018, from 6:00 pm to 8:30 pm, at the Children’s Creativity Carousel and Museum, 221 4th Street, San Francisco. More information can be found on the Global Genes website

May 19, 2018
The 2018 Rare Patient Advocacy Symposiuma partnership between Global Genes and the Penn Medicine Orphan Disease Center, will be held in Philadelphia. The Symposium has been developed for patient advocates to learn, connect and be inspired.  Attendees do not need to be affiliated with the MDBR and all rare patient, advocates and stakeholders are welcome to attend. More information can be found on the Global Genes website.

June 11-12, 2018 
4th World Congress on Rare Diseases and Orphan Drugs
Rare Diseases Conference 2018 serve as a bridge between researchers from academia and health care centers enhanced by its well organized scientific sessions, plenary lectures, poster presentations, world class exhibitions, diverse symposiums, highly enriched workshops and B2B meetings and it will continue the tradition of being an important focal point of the Rare Diseases scientific community and an excellent forum for academics and professionals to present their results and discuss advancements in a wide range of areas of Rare Diseases. The conference will be held in Dublin, Ireland.

More information can be found at the conference website.

If you have an event you’d like added to this calendar, send us an email

This page was last updated January 17, 2018


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