At Only Twenty Years Old, Lindsay Learned She had May-Thurner Syndrome


My story begins in 2010. I was 20 years old, and I was enjoying the perfect summer. My summer was filled with trips to the beach with my friends, going up North with my boyfriend Eric and working as a Certified Nurse’s Aide.

On July 30th, 2010, I was getting ready for work when I noticed that my left leg hurt and was warm to the touch. I had gone to the beach the day before with my friends, and I assumed that I had gotten a sunburn, so I wasn’t worried.

A few days passed, but instead of getting better, my leg was getting worse. I could barely stand on my leg because it hurt so much. When I did stand, my leg would begin to swell and turn purple. At the time, I assumed that whatever was wrong with me could be fixed with rest, which is why I was surprised when I ended up in the emergency room for an ultrasound.

After the ultrasound, I was taken back to my room, where my mom sat waiting for me. As we waited for the doctor to come and tell me the results of my ultrasound, I told my mom that I was sure that I had just pulled a muscle and that I would soon be released. Soon after I said this, the doctor walked in, but it was not with discharge papers.

I will never forget what happened next. He stood by the side of the bed and told me that I had a large deep vein thrombosis in my left thigh. He explained that a deep vein thrombosis was another way of saying blood clot. All I could do was sit, completely stunned. I was 20 years old. Twenty-year olds do not get blood clots.

As time went on, the pain did not decrease like I was expecting it to. In desperation, I began to search for a doctor who could provide me with the answers that I desperately needed. My search took me all the way from one side of the state to the other.

I didn’t realize that it would take close to a year before I would get an answer. During that long year, the pain continued and I almost had no hope by the time I met the doctor who would be the only one to give me an answer. On June 14th, 2010, I walked into the hospital for my venogram. I was ready for my clot to be gone. About an hour later, I would get my long-awaited answer.

Finally, the months of pain and agony had an answer: May-Thurner syndrome. I had never heard of May-Thurner syndrome. In fact, not many people have because it is a rare disorder.

Since the diagnosis and treatment of my May-Thurner syndrome, I have been leading a very active, healthy life. I am going to college to become a medical social worker, and I’m enjoying every second of being healthy!

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