FIRST Releases New Ichthyosis Awareness Video

This year, in recognition of Ichthyosis Awareness Month, IAM, the Foundation for Ichthyosis & Related Skin Types, Inc.® (FIRST) will publish a unique awareness campaign featuring real-life patients, affected with ichthyosis. The campaign will run throughout the month of May and carry the message, “Be Inspired. Use Your Voice. It Matters to Someone.” The positioning was chosen to encourage the general public to learn more about this rare skin disorder and to help support our mission of educating, inspiring and connecting all those affected with ichthyosis and related skin types.

The video below, including several members of our community, helped to kick off the month, and offers a variety of ichthyosis types as a way to start the conversation” during ichthyosis awareness month, and always. To learn more about ichthyosis please go to


Filed Under: Awareness, People & Organizations, Rare Community

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Global Genes Comments

  1. good shared information

  2. I read your article with a great deal of interest, this video is very informative. Thank you for this good information.

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