RARE Daily

Gas Station Network Fuels Rare Disease Organization with $65,000 Donation

October 21, 2019

Global Partners, which operates one of the largest networks of gas stations and convenience stores in the Northeast, said it raised more than $65,000 for Cure Rare Disease, a Boston-based non-profit organization focused on the development of precision medicine therapeutics that combat select rare diseases.

Cure Rare Disease has assembled leading researchers and clinicians nationwide to develop precision medicine therapeutics for rare, genetic, and fatal diseases like Duchenne muscular dystrophy (DMD), one of eight designated rare diseases that the non-profit is focusing on today.

I founded CRD in response to the disappointing lack of therapies and feasible treatments for my brother, Terry, and millions of others who suffer from the wide variance of genetic diseases,” said Rich Horgan, founder and president of Cure Rare Disease. “Our mission is to pioneer customized therapeutic developments in record time, thanks to our stellar team of researchers, partners, and our donors.  Every single dollar counts, and partnerships with organizations like Global Partners propel us closer to a cure.”

Global Partners facilitated a giving program for four weeks in August with a $1 ask and cashbox collection campaign at approximately 300 local stores.

“With millions of people impacted by more than 7,000 rare diseases, our goal is to continue to fund their transformational solutions, inspiring both awareness and hope,” said Joanna Linder, vice president of marketing at Global Partners. “We’re committed to supporting the communities where we live and work and look forward to continuing this partnership in 2020.” 

Photo: Global Partners delivers donation to Cure Rare Disease 

Author: Rare Daily Staff

Stay Connected

Sign up for updates straight to your inbox.