How Destiny Lamonte Learned to Advocate for Herself and Others


At the age of 4, Destiny Lamonte was diagnosed with vascular Ehlers-Danlos syndrome, a rare connective tissue disorder and considered the most severe form of EDS. As a result of her condition, Lamonte has contended with a long list of complications and underwent multiple surgeries. Nevertheless, she managed to earn a college degree in psychology and today provides support to people in crisis through an online counseling service. We spoke to Lamonte about her life with a rare condition for which there is no therapy, how she has navigated the complexities of the disease, and how she learned to advocate both for herself and others.

Filed Under: Global Genes, People & Organizations, Rare Community, RARECast Podcasts

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