PKU Life | Kevin Alexander


Kevin Alexander is 33 years old and was diagnosed with Classical PKU at birth. Growing up in the 1980’s Kevin was told that he could relax his diet as he grew older. As a teenager, he didn’t keep a very strict diet and stopped drinking formula. As a result, he was a C average student in high-school and college. In his early twenties he started drinking formula again, and his overall health improved. Subsequently he was able to pursue a graduate degree, which he completed in 2011 with a 3.75 GPA.

He has never allowed PKU to prevent him from accomplishing his goals. He has a Bachelor’s Degree in Mass Communication, a Master of Arts in Theological Studies, and has over 10 years of experience in professional video production. He spent 7 years working in local TV news as a news videographer and satellite truck operator. He covered many national stories for local news including the 2003 Columbia Shuttle Disaster, numerous hurricanes, the 2007 BCS Championship Game (Geaux Tigers!), and even witnessed the catastrophic damage in New Orleans less than one week after Hurricane Katrina. He has since left the TV news business and now has his own video/digital film production company, Creative Control Films. He has traveled the world, shooting videos all across the US, Mexico, the Cayman Islands, Russia, Ireland, Finland, Brazil, & Australia.

Until 2011 Kevin did not have much contact with other PKU patients. Since the release of his short documentary “My PKU Life” on YouTube, Kevin has now connected with hundreds of PKU patients and family members around the globe. Today he produces videos and other short films about PKU which are on his website, www.PKUlife.tv. He has traveled the world using his gift of filmmaking to promote various causes, but has found the most satisfaction in building a community where PKU patients around the globe can receive the social support they desperately need.

For an introduction to Kevin‘s life with PKU, check out this short film he produced called “My PKU Life”: https://www.pkulife.tv/2011/11/22/my-pku-life/

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Global Genes Comments

  1. Hi kevin hope you can help me my sister is p.k.u like me since the 60s but she going down to london to vist mum she be their two weeks she does.nt bring her diet food down.she is fine but bloods 800 to 900 how can i help her.my mum turns a blind eye to our p.k.u she feels we don.t need it and throughs out food out when we vist thats why my sister does.nt bring it down.help

  2. Great success story but in my experience the Docs always want to blame PKU for things…I did average in college as well but it had nothing to do with PKU and everything to do with the lack of studying I did. DO THE DOCTORS ever examine the brain to see what damage there is in a person with PKU who has not been on diet??

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