NEXT: Lara Bloom, CEO of The Ehlers Danlos Society, Discusses the Future of Rare Disease
November 25, 2019
Lara Bloom, CEO of The Ehlers Danlos Society, discusses the future of rare disease and the challenges that will need to be addressed in this brief interview. It was filmed during the Global Genes’ 2019 Rare Patient Advocacy Summit in September 2019. It coincided with the release of Global Genes’ report NEXT: Imagining the Future of Rare Disease.
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