RARE Daily

NEXT: Luke Rosen, KIF1A.org, Discusses the Future of Rare Disease

November 4, 2019

Luke Rose, founder of KIF1A.org, discusses the future of rare disease and the challenges that will need to be addressed in this brief interview. It was filmed during the Global Genes’ 2019 Rare Patient Advocacy Summit in September 2019. It coincided with the release of Global Gene’s report NEXT: Imagining the Future of Rare Disease

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