IPF Patients Treated with Ofev® VS Placebo Were Twice as Likely to Have Improved or Stable Lung Function

Separate subgroup analysis demonstrates long-term…

Shire’s Swelling Disorder Drug Moves Closer to U.S. Approval
By Natalie Grover (SOURCE) Successful late-stage data on Shire Plc’s, long-acting preventative treatment for hereditary angioedema (HAE)… Continue Reading
Global Genes Rare Disease Patient Impact Grant Goes Towards The LHON Genealogy Project
As a 11778G>A mutation carrier, Lissa Poincenot, founder of LHON.org, is forever connected to the Leber hereditary optic neuropathy (LHON)… Continue Reading
NFL Player Struggles with Complex Regional Pain Syndrome (CRPS)
(SOURCE) After just two days around the Seahawks, Tammy Jones is all in. “I love the Seahawks family already. I feel like I’m leaving… Continue Reading
Family Hopes to Raise Awareness for Daughter with Neurofibromatosis (NF)
May has been designated as National Neurofibromatosis (NF) Awareness Month and bringing awareness to this rare genetic disease is a personal… Continue Reading
Project Alive: Documentary Series and Social Media Challenges Seek to Raise MPS Awareness
May 15 each year is known to some parents as International MPS Awareness Day. But for most people, they’ve never heard of MPS. Two recent… Continue Reading
The Balancing Act Covers the Orphan Drug Conference USA 2017
The Orphan Drug Conference USA 2017 welcomed thousands of attendees as science, industry, big pharma, and patient advocacy groups met in… Continue Reading
Global Genes® to Convene RARE Partnering and Investor Forum to Accelerate Drug Development for Rare Diseases
[Aliso Viejo, CA] May 19, 2017 – Global Genes®, a leading rare disease patient advocacy organization, will host the inaugural RARE… Continue Reading

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