Pardon Our Dust: RAREDaily Under Construction

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Dalhousie Researcher Studying Drug to Combat Fabry Disease
A simple pill that switches off a genetic trigger could potentially provide a powerful treatment for Fabry disease, a rare disorder that… Continue Reading
Rare Disease Patient and Lawyer: “I Want to Walk Again”
By Paula J. Owen (Source) It is a rare, inherited, progressive disease affecting one in 50,000 that results in loss of ambulation six to… Continue Reading
Rare Disease Report: Learning to See Thanks to a Blind Person
Many rare disease parents gain strength and inspiration by watching their ‘disabled’ child adapt because of – and sometimes thrive in… Continue Reading
Horizon Pharma plc Partners with Global Genes® to Unite the Rare Disease Community at the BIO International Convention
Text the Word “RARE” to 565-12 to Generate a Donation to Global Genes DUBLIN, Ireland, June 20, 2017 (GLOBE NEWSWIRE) — Horizon… Continue Reading
Young Patient Collects Can Tabs to Raise Funds for Ronald McDonald House
(SOURCE) A Bristol teen who delivered a trailer full of aluminum can tabs to the Ronald McDonald House in 2014 is now attempting to collect… Continue Reading
Australian Man Experiences Rare Instance of Guillain-Barré Syndrome (GBS)
Thanks to 9News.com.au for this piece. A Sydney man who was paralysed by a rare autoimmune disease while holidaying in New Zealand last… Continue Reading
Brother and Sister Receive Rare Cystinosis Diagnosis
Joel Strickland is a rare boy, not only because he is a diminutive, 12-year-old, guitar-playing, cowboy-hat-wearing, dirt-bike-riding… Continue Reading