IPF Patients Treated with Ofev® VS Placebo Were Twice as Likely to Have Improved or Stable Lung Function

Separate subgroup analysis demonstrates long-term…

She made it! Cindy Abbott reaches summit of Mt. Everest!
At the age of 48, after watching a documentary on TV, Cindy Abbot decided to start training for mountain climbing. Soon after, she was… Continue Reading
Primary Care and HIT – What do they mean for you?
Howard Liebers of MarbleRoad asks questions about how efforts in both primary care and health information technology may impact families… Continue Reading
Rare Disease Recurrent Respiratory Papillomatosis – Perspective of Family Friends
To know Nora, Ayrie and Shiya is to absolutely love them.  Spend an hour with Nora and you’ll see how much she cares for her boys, spend… Continue Reading
Meet CheckOrphan
A big thanks to the folks at CheckOrphan for celebrating the birthday of blue jeans with us on May 20.  Read the CheckOrphan blog post… Continue Reading
How 'Brain Training' Can Make You Smarter
Neuroscientists are increasingly showing that there's actually a lot that can be done. It turns that the brain needs exercise in much the… Continue Reading
Welcome to Scientific Curiosity.
I never expected for my very first question to get picked for an answer (see first question here), and then last Friday I was so excited to… Continue Reading
Resentment is an incredibly strong emotion.  Most of us will deny that we resent anything.  We might say we are angry, frustrated,… Continue Reading

Follow us on Twitter

Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:30 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 5:00 pm - 9:30 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:00 pm - 5:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm