A Reminder that Gene Therapies Are Not Drugs

  FDA Commissioner Scott Gottlieb this week…

Wall Street Journal Goes In Depth On Tay-Sachs – Rare Disease Does Not Only Afflict Jewish, But Irish Community
Study Looks at Irish Risk for a Rare Fatal Disease By Amy Dockser Marcus The Wall Street Journal Online Tay-Sachs disease is generally known… Continue Reading
Bracelets Provide Becca Hope That She Can Fight Her Multiple Rare Diseases
My name is Rebecca. I recently received my bracelets from your 7000 Bracelets of Hope program. I suffer from many rare autoimmune diseases,… Continue Reading
2012 BIO International Convention Addresses Breakthrough Medicines for Rare and Genetic Diseases
The 2012 BIO International Convention provided an important opportunity for patient advocacy organizations like Global Genes Project, Tay… Continue Reading
Thanks for Creating the 7000 Bracelets for Hope™ Bracelet Program
Receiving this bracelet was really special for me. The bracelet itself is beautiful and I will wear it often. But the bigger gift was… Continue Reading
Huntington’s Documentary Trailer Released – “The Huntington’s Disease Project: Removing the Mask”
Meet James Valvano.  James speaks to Global Genes of his impassioned determination to make a difference in the world of Huntington’s… Continue Reading
Southern California Rare Disease Advocates Meet To Share Information
On Thursday, May 31st, 2012, Global Genes our first RARE Meetup™ for South Orange County in Dana Point, California.  Patients and parent… Continue Reading
My Addictions Will Captivate You – Beautiful Handcrafted Jewelry by Patti Vanderbloemen
Patti Vanderbloemen lives in Northern Virginia and  loves crafts of all kinds, particularly jewelry making.  Her favorite jewelry… Continue Reading