Global Genes Awards Total of $110,000 in Rare Patient Impact Grants

Rare Daily Staff Global Genes today announced it…

The Flammable Heart Exhibition
The Charles August Long Undiagnosed Diseases Act of 2011; the battle to save community health center funding and keep Medicaid intact; The… Continue Reading
Seeing a New Doctor Today? Electronic Health Records Technology Can Help Get Your Doctor Up to Speed in Minutes
You’ve been through it before. You meet a new physician or end up in the ER trying to explain the complicated medical history of your… Continue Reading Reports – Rare Disease Studies Seek Online Giving
The Global Genes Fund seeks online donations for conditions such as progeria, a rare disorder that causes accelerated aging. Those wanting… Continue Reading
Special Needs ~ A Definition
I get a lot of questions from individuals asking me what quantifies a child with special needs? Are all Russell-Silver Syndrome children… Continue Reading
WSJ Health Blog Reports – Results in Mice May Help Shape Clinical Trial for Children With Rare Fatal Disease
By Amy Dockser Marcus, Wall Street Journal Health Blog It’s a well-known maxim in science that curing a disease in a rodent doesn’t… Continue Reading
Ultragenyx – Hereditary Inclusion Body Myopathy (HIBM) New Champion for Hope
Rocking It For Rare Disease! If anyone can do it, Dr. Emil Kakkis can.  One of the rare disease communities scientific champions (also one… Continue Reading
ABC News Reports – DNA Sequencing and it's Impact on Rare Disease Family
ABC News reports on The Beery family and their fight to help their children, and to better understand the specifics related to their… Continue Reading