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Survey says: Misdiagnosis of rare diseases is common
No doubt many of you reading the above thought, “Well, I could have told you that!” Here’s a statistic: The  of 5,980 people about… Continue Reading
Cherry Red Spot – Telltale Sign of Neurometabolic Disorders
I received a call today at The Hide and Seek Foundation from a woman who’s cousin’s seven month old son, Ben, has been displaying… Continue Reading
Rare Disease Facts and Figures: 1 in 10 Americans is Living With a Rare Disease
The last day of February has been designated as World “Rare Disease Day” to call attention to the public health issues associated with… Continue Reading
World Rare Disease Day 2009 Efforts Underway!
How exciting this week has become. We are proud to be affiliated with children across the country working to create greater public awareness… Continue Reading
Albany High School Students Unite To Raise Money For World Rare Disease Day 2009
Students at Albany High School in Albany, California, are asking classmates, teachers and parents if they can spare some change to help… Continue Reading
Burrill Personalized Medicine Meeting
What we at The Project will be working on bringing you all the updates from industry regarding advancements in Science, R&D, trends in… Continue Reading
World Rare Disease Day Announced
We are very pleased to announce and support for the first World Rare Disease Day in the United States, scheduled for February 28, 2009. Stay… Continue Reading