Why a Sports Physical May Trigger a Doctor to Think About a Rare Diagnosis

Marfan syndrome is a genetic disorder that affects…

Toy Request Application
The Dare To Hope Foundation distributes toys to help brighten the day of children with rare, complex, critical, chronic and undiagnosed… Continue Reading
Children's Rare Disease Network – RARE Blog partners with Local.com; Looking for Contributors!
Local.com, one of the nation’s leading online search sites has formed a partnership with RARE!  We are contributing content to help… Continue Reading
National Institutes Of Health Hosting World Rare Disease Day Event; Dr. Francis Collins To Speak; Wear Jeans!
The National Institutes of Health (NIH) will celebrate the 3rd World Rare Disease Day on February 28, 2011, with a day-long celebration and… Continue Reading
Kids Helping Kids – Denim Ribbon’s being made to support World Rare Disease Day!
Over 50 kids and their families descended upon the RARE Offices to help make denim ribbons in preparation for World Rare Disease Day taking… Continue Reading
Judgement – Do Not Defend Yourself When It Comes To Your Child’s Rare Disease
Parents of special needs children are continually scrutinized and judged by others. Those who have not been affected by a child with a rare… Continue Reading
RARE Artist contest deadline extended! Enter today!
The second annual RareArtist.org art contest is taking place now. What was so compelling last year was to see all the amazing art that was… Continue Reading
Perspectives From an Exhausted Mom
Decision. A word. An action. A finality of choice, sometimes met with indecision and fear. Sometimes the decision coaxes our self to make… Continue Reading