Rewriting Faulty RNA

When Daniel de Boer’s son was diagnosed with…

Family Shares Story of Living with a Rare Condition
At eight years of age, Tommy Glatzmayer is two years younger than his sister Melanie, but he has always been protective of her. Melanie was… Continue Reading
International Day of Acceptance 3E Love Discount! Get Your Wheelchair Heart.
Tell the world you embrace who you are; a person with social rights, who has an opinion, who has interests, who has goals and who loves… Continue Reading
Dare To Hope Foundation Facebook Support Group
The Dare To Hope Foundation has created a new version of our on-line support group, Ainsley’s Village, for parents of children with rare,… Continue Reading
Toy Request Application
The Dare To Hope Foundation distributes toys to help brighten the day of children with rare, complex, critical, chronic and undiagnosed… Continue Reading
Children's Rare Disease Network – RARE Blog partners with; Looking for Contributors!, one of the nation’s leading online search sites has formed a partnership with RARE!  We are contributing content to help… Continue Reading
National Institutes Of Health Hosting World Rare Disease Day Event; Dr. Francis Collins To Speak; Wear Jeans!
The National Institutes of Health (NIH) will celebrate the 3rd World Rare Disease Day on February 28, 2011, with a day-long celebration and… Continue Reading
Kids Helping Kids – Denim Ribbon’s being made to support World Rare Disease Day!
Over 50 kids and their families descended upon the RARE Offices to help make denim ribbons in preparation for World Rare Disease Day taking… Continue Reading

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