PKU: Time To Live


Editor’s Note:  Kevin Alexander has Phenylketonuria (PKU), a rare inherited metabolic disorder.  Kevin shares with us his vision for a blog:

One vision that I have for my blog is for it to be a place where I can just be real with you. It’s all too easy to wear a mask. We do it every day; in some cases we just have to. But the last thing I want to do is write a blog where I just wear a mask, never admitting when things aren’t going well… Just plastering a smile on my face and pretending like everything is OK.

So I’m going to be real with you. It’s been a rough couple of days. I’m not talking about my diet here. I didn’t go off diet over the weekend or anything like that. But I’ve found when certain things in my life are out of balance it just makes things difficult. It becomes difficult to keep a positive attitude. I can’t control the fact that I have PKU. But rather than let that fact overwhelm and frustrate me I just accept it. And most of the time I’m able to keep a positive outlook on things.

Read the rest of Kevin’s heartwarming and insightful blog.

“There are days that I struggle. That’s just life. Even if I didn’t have PKU that would be the case. But what keeps me going is my dream.” by Kevin Alexander

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