Pope Francis to Meet with Huntington’s Disease Patients on May 18, 2017


Pope_Francis

On May 18th, in the first ever papal audience with Huntington Disease families, Pope Francis will meet with the people affected by this disease from South America and we extend a warm welcome to the entire HD community to attend!

WHAT: The largest global gathering of the Huntington’s Disease community
WHEN: May 18, 2017
WHERE: Vatican City, Italy

The purpose of the event is to raise awareness of Huntington’s Disease and the overwhelming challenges faced by the patients, families and caregivers affected by the disease. As part of the HDdennomore initiative (pronounced “Hidden No More”), the event aims to shine a light on and bring global attention to the HD community, and to mobilize action to improve the lives of those affected by HD.

HDdennomore and the event with Pope Francis is made possible by a global coalition of patient advocates, including Factor-H, the Huntington’s Disease Society of America (HDSA), Elena Cattaneo (professor and lifetime senator) and Charles Sabine.

Visit www.HDdennomore.com for the latest information on this event.

Filed Under: Community Events, Rare Community

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Global Genes Comments

  1. My brother has Huntingtons and that is his birthday

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