Rare Disease Congressional Caucus Announced


John Crowley announced the Rare Disease Congressional Caucus this week. Leaders include Congressman Fred Upton and Congressman Joseph Crowley.

This is exciting news for the rare disease community. Hoping great things come from this.

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Global Genes Comments

  1. Hi all, I’m in remission with my autoimmune hepatitis disease but am now at the hands of bad fatigue, I would love to hear from others who suffer or who are suffering from the disease as I feel so alone. I’m a good listener too, I’m hangin in there, I hope you all are too.

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