RARE DISEASE DAY EVENTS 2012


Looking for a way to participate in Rare Disease Day Events?

Don’t miss these Rare Disease Day events in DC!

 

Monday, February 27, 2012

RDLA Luncheon Meeting & Conference Call (Host: Rare Disease Legislative Advocates)

12:30 – 2:00p.m. at 750 9th Street NW, Suite 750 Washington, DC

 

2nd Annual RDLA Cocktail Reception and Movie Screening

5:30p.m – 9:00p.m at the West End Cinema, 2301 M Street NW, Washington DC

Featuring: The Documentary “Fight to Live” with panel discussion led by Academy Award Winning Director Barbara Kopple

 

Wednesday, February 29, 2012

Rare Disease Day at NIH (RDD@NIH)

Clinical Center’s Masur Auditorium, 9000 Rockville Pike, Building 10, Bethesda, MD

The National Institutes of Health (NIH) will celebrate the fifth annual Rare Disease Day with a day-long celebration. Attendance is free, open to the public and will be webcasted.

 

Thursday, March 1, 2012

FDA Rare Disease Patient Advocacy Day

White Oak Campus, 10903 New Hampshire Ave, Silver Spring, MD The Food and Drug Administration (FDA) will celebrate the fifth annual Rare Disease Day by hosting a “FDA Rare Disease Patient Advocacy Day” to engage and educate the rare disease community on regulatory processes related to rare diseases. Attendance is free. Registration is required. The event will be webcasted.

 

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