RDR: Patient, Police and Fire Fighters ‘Shake It Off’ for Rare Disease


Taylor Swift Shake It Off

Rare Disease Report

Hallie Bea Barnard is a young girl suffering from Diamond Blackfan Anemia (DBA) and is currently looking for a bone marrow transplant match.
 
With help from her parents, she created an organization called Hallie’s Heroes to help raise money to fund research, and also educate and advocate for bone marrow donors.
 
In an effort to serve and protect Hallie’s Heroes mission, police and firefighers from her home town of Fort Worth, as well as the non-profit  DKMS, created an awareness video to the tune of Taylor Swift’s “Shake It Off” (see below).

For more information on Hallie’s Heroes or to donate, visit http://teamhalliebea.org

About Diamond Blackfan Anemia (DBA)

DBA is a rare inherited bone marrow failure syndrome, characterized by a failure of the bone marrow to produce red blood cells. The lack of red blood cells become apparent in the first year of an individual’s life. DBA affects approximately 5 to 7 per million live born infants worldwide. Approximately half of individuals with DBA develop physical abnormalities as well like head size (microcephaly) or broad, flat bridge of the nose.
 

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