Have You Shared Your Patient Story?

Do you have a rare story of hope and courage to share?

If so, we want to hear from you!

Tell us about your search for a diagnosis. What hospitals did you go to? What doctors did you see? What kind of tests were performed? Sharing these kind of details with readers has been proven on our site time and again to lead to another patient’s diagnosis!

Struggling to find your diagnoses? Let the community read your story and see if they can steer you in the right direction.

Your experience is valuable to all rare disease patients!

Share your story here!

Filed Under: Get Involved


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Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:30 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 5:00 pm - 9:30 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:00 pm - 5:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm