Have You Shared Your Patient Story?


Do you have a rare story of hope and courage to share?

If so, we want to hear from you!

Tell us about your search for a diagnosis. What hospitals did you go to? What doctors did you see? What kind of tests were performed? Sharing these kind of details with readers has been proven on our site time and again to lead to another patient’s diagnosis!

Struggling to find your diagnoses? Let the community read your story and see if they can steer you in the right direction.

Your experience is valuable to all rare disease patients!

Share your story here!

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