Shwachman-Diamond Syndrome Foundation


Founded in 1994 by Joan Mowery, the mother of an SDS patient, Shwachman-Diamond Syndrome Foundation is an international, nonprofit, patient advocacy organization. Our goals are to advocate and support research towards a cure and treatments, to improve medical management of symptoms, as well as to link families for emotional support and supply them with the most current medical information available.

This information is provided with the expertise and cooperation of the Shwachman-Diamond Syndrome Foundation’s professional medical advisory board.

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