Top Four Reasons to Attend RARE on the Road This Year!


Together with EveryLife Foundation, Global Genes is hitting the wide open road for “RARE on the Road: Rare Disease Leadership Tour.” This three-stop event will take place in Atlanta, GA., Kansas City, MO., and Portland, OR.

The tour will help bring critical education and insights to rare disease patients, caregivers, and other advocates. We are united to build and activate the rare disease community on a local level. Whether you’re new to the rare community or a “seasoned veteran,” this full day workshop will benefit you!

The top 4 reasons to get involved:

  1. DISCOVER more about why your story has power— master storytelling to help achieve your goals
  2. LEARN more about your role and what you bring to the table—where your experience and knowledge can help patients and the Rare Disease Community at large
  3. CONNECT and collaborate with other rare disease patients and organizations to gain insight from others rather than reinventing the wheel
  4. RECOGNIZE the immense impact public policy can make- become aware of legislation that can vastly improve the lives or rare disease patients
    Learn more about #RAREOnTheRoad by clicking here.

Filed Under: Global Genes, Global Genes Events

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Upcoming Events

Sep 14

Rare Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

Rare Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

Rare Patient Advocacy Summit

September 15 @ 8:00 am - 4:00 pm
Sep 15

Community Nominated Ceremony and Reception

September 15 @ 4:30 pm - 9:00 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

Rare Day of Beauty

September 16 @ 12:30 pm - 4:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm