Patient organizations, academics, researchers, industry, government agencies, and healthcare professionals are invited to submit a poster abstract for the 2021 RARE Drug Development Symposium event June 9-11 2021. Those who have conducted research or program studies within rare disease are encouraged to apply to present. Please review the following guidelines before submitting an abstract.

Please complete the form here to submit your abstract for consideration. All submissions must be received by 5pm ET on May 9th, 2021 in order to be considered for the 2021 program.

*University of Pennsylvania researchers will submit on behalf of University of Pennsylvania, Orphan Disease Center; all other submissions are on behalf of Global Genes.



The theme for this year’s RARE Drug Development Symposium is “From Imperative to Action: Advancing Equity, Diversity and Inclusion in Rare Disease Research and Care.” We encourage submissions that align with our over-arching theme; suggestions of specific topics include, but are not limited to: cultural competency in patient outreach, diversity and representation in clinical trials, the value of inclusive data sets and access to care and research for underserved communities. Abstracts may also be submitted by minority researchers working to advance care, treatments and/or policy for rare disease patients.

We encourage patients, advocates and nonprofits to submit abstracts showcasing scientific advancements they have made that they would like to share with researchers, academics, industry and healthcare professionals.


Display Guidelines

Accepted posters will need to submit the final materials for presentation by June 1st, 2021.

  • A poster to be presented digitally (PDF/PNG)
    • Posters should include data (summary, method, evaluation, results, demographics, etc.) for consideration
    • Preliminary and pilot data will also be accepted
  • A final poster abstract
  • A 3-5 minute video summarizing your research or key highlights
  • Presenting author(s) headshot(s) and short bio(s)
  • File Size Limit: 2560 x 2560 maximum pixels or 500MB

*Additional guidelines and best practices in designing a virtual poster will be provided upon acceptance.


Abstract Submission Details

Please be prepared to include these materials with your submission:

  • Presenting author’s contact information
  • Poster title and abstract (preferred length under 700 words)
  • Brief biography for presenting author (additional presenter bios may be included)



  • Poster Abstract submission period opens March 18th, 2021
  • Abstracts must be submitted by 5pm ET on May 9th, 2021
  • Notification of Acceptance will be issued on May 21st, 2021


Submission Requirements

Please be prepared to include these materials with your submission:

  • Presenting author’s contact information
  • Poster title and abstract (preferred length under 700 words)
  • Brief biography for presenting author (additional presenter bios may be included)


Presenter Responsibilities

Presenters will incur all costs* and responsibilities of presenting, including registration fees and materials. Presenters must register for the event in order to access the poster booth**. A registration link will be provided upon abstract acceptance.

*Scholarship opportunities may be available for qualified patients, advocates and researchers; Please contact Anne Wolfe at [email protected] to inquire.

**Presenters are encouraged to attend the virtual program, but if unable to attend may send their poster for display. Please contact Global Genes to discuss arrangements.



All poster presenters will receive a certificate of participation. Additionally, the top three posters will be invited to present at the Global Genes RARE Patient Advocacy Summit (September 2021) and provided with a free registration. Posters will be evaluated by an expert committee of rare disease researchers.


Contact Information

University of Pennsylvania, Orphan Disease Center Contact: Samantha Charleston, [email protected]

Global Genes Contact: [email protected]  


Presentation Schedule

Thursday June 10th, 2021

Virtual Poster Session: 12:00pm – 1:00pm ET

Friday, June 11th, 2021

Virtual Poster Session: 12:00pm – 1:00pm ET

*Posters will remain available for viewing throughout the Symposium and Pre-Conference Day (June 9th – 11th), but presenters are requested to be present for Q&A during these scheduled windows



Is there an abstract submission fee or other presenter costs?

There is not a fee to submit an abstract. However, accepted poster presenters must register for the event in order to attend and access their virtual poster/booth. Poster presenters may register at the discounted rate of $50* and registration details will be provided upon acceptance.


*If the registration fee presents a barrier to access for you, please reach out to Anne Wolfe at [email protected] to discuss potential scholarship opportunities.


Are there rules about previous presentation of data?
Encore presentations are permitted. All abstracts will undergo review by the Abstract Review Committee who will assess for scientific merit and novelty.

Is a trial-in-progress abstract allowed?

Is there an author limit for abstracts?

Is there a word limit or character count to which we should adhere? 
700 words, Charts and graphs are acceptable.

What are the Embargo Rules, if any?
None for encores; for primary disclosures, scientific dissemination should be reserved until after the Conference. Press releases and media coverage are allowed in advance of the Conference.


Is there a language requirement for the abstracts?
English is preferred.


What will be included in the virtual poster booth?

Booths will include your abstract, presenter information, poster, video and live chat. There is also an option to add scheduling links and/or zoom links if you’d like to video chat with the attendees. Further details will be provided to accepted presenter


What technology are you using? Is it complicated?

All accepted poster presenters will have an opportunity to participate in a virtual training session with the technology support team for the event. Further details regarding the platform, login details, and technologies will be available for accepted presenters.


I still have questions, who can I reach out to?

For posters submitted on behalf of the University of Pennsylvania, Orphan Disease Center, contact Samantha Charleston: [email protected]


For all other posters, contact Anne Wolfe: [email protected]