Video
February 5, 2019 By Global
Summit Day 2: Session 4- Patient-Centered Benefit-Risk Assessment: Why It Matters To You
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Video
February 5, 2019 By Global
Summit Day 1: Opening Remarks and Session 1: Caregivers- Strategies to stay Afloat
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Toolkit
January 31, 2019 By Global
Informed Consent: Important for Treatment Decisions and Advancing Research
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Toolkit
January 25, 2019 By Global
Parenting A Child With Life-Limiting Illness
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Webinar
January 1, 2019 By Global
Transition of Care Planning for Care for Children with a Rare Disease
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Report
November 21, 2018 By Global
Rare Disease Caregiving in America
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Toolkit
November 21, 2018 By Global
Navigating Health Insurance
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Video
October 30, 2018 By Global Genes
Modern Therapies for Emotional Health: Different Ways to Cope
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Video
October 30, 2018 By Global Genes
Understanding the Emotional Health of Rare Disease Families
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Video
October 30, 2018 By Global Genes
Understanding the Emotional Health of Rare Disease Patients
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Video
October 30, 2018 By Global Genes
Update from the Community: Caregiver Survey
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Video
October 2, 2018 By Global
Track 1: RARE Kids Growing Up Experiencing Transitions in Care and Life
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