Toolkit
January 31, 2019 By Global
Exploring Treatment Options for Rare Disease: Pediatric Palliative Care
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Toolkit
January 31, 2019 By Global
Informed Consent: Important for Treatment Decisions and Advancing Research
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Toolkit
January 31, 2019 By Global
Keys to Help Rare Disease Patients Ensure a Successful Surgery
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Toolkit
January 31, 2019 By Global
Rare Disease Registries: Advancing Disease Understanding, Treatments, and Cures
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Toolkit
January 29, 2019 By Global
Exploring Treatment Options For Rare Disease: Cord Blood Transplants
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Video
November 21, 2018 By Global
Looking for Answers in Uncertainty: Managing When There is No Diagnosis or Prognosis
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Webinar
November 21, 2018 By Global
Keys to Effectively Communicate with Healthcare Providers
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Webinar
November 21, 2018 By Global
Understanding Gene Therapy
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Webinar
November 21, 2018 By Global
Health Insurance 101
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Toolkit
November 21, 2018 By Global
Navigating Health Insurance
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Toolkit
November 21, 2018 By Global
From Molecules to Medicine: Clinical Research
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Video
October 30, 2018 By Global Genes
Looking for Answers in Uncertainty: Managing When There is No Diagnosis or Prognosis
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