Community Resource
February 6, 2019 By International WAGR Syndrome Association
Resource List for Rare Disease Patient Registries
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Toolkit
January 31, 2019 By Global
Leveraging a Rare Disease Center of Excellence
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Toolkit
November 26, 2018 By Global
Molecules to Medicine: How Patients Can Share their Voices Through the Drug Development Process
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Toolkit
November 21, 2018 By Global
Drug Development Roadmap
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Course
November 21, 2018 By Global
Understanding Drug Development
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Video
November 21, 2018 By Global
Rare Therapies: A New Era for Genetic Medicines
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Video
November 21, 2018 By Global
We Can’t Do it Alone: Structure and Governance for Research Collaborations
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Toolkit
November 21, 2018 By Global
From Molecules to Medicine: Clinical Research
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Toolkit
November 21, 2018 By Global
From Molecules to Medicine: How Are New Drugs and Therapies Developed?
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Video
October 30, 2018 By Global Genes
Closing Session – Data and Technological Innovation
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Video
October 30, 2018 By Global Genes
Medical and Scientific Advisory Board Presents Patients Driving Advances From Research to Therapy
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Video
October 30, 2018 By Global Genes
Data, Data, Data: Sharing and Owning Data to Game Change Rare Disease Research
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