RARE on the Road – 2019

Join Global Genes and EveryLife Foundation for Rare Diseases on tour:

March 30, 2019: Boston, MA
Broad Institute
Monadnock Room
415 Main Street
Cambridge, MA 02142

May 4, 2019: Birmingham, AL
Children’s of Alabama
Children’s Harbor Building
1600 6th Ave South
Bradley Conference Room, 4th Floor
Birmingham, AL 35233

May 18, 2019: Denver, CO 
History Colorado Center
MDC Terrace Room
1200 N Broadway
Denver, CO 80203

July 13, 2019: Sioux Falls, SD
Sanford Research Center
2301 E 60th Street North
Sioux Falls, SD 57104

The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates. We are uniting to build and activate the rare disease community at the local level. Whether you’re new to the rare disease community or a “seasoned veteran” this workshop will benefit you!



2018 Gold Level Sponsors 

2018 Silver Level Sponsors

2018 Bronze Level Sponsors 

2018 Hope Level Sponsors

For more information and for sponsorship questions please contact:

Carol Kennedy-EveryLife Foundation CKennedy@everylifefoundation.org

Kathy O’Connor-Global Genes kathyo@globalgenes.org

Seth Fritts-Global Genes sethf@globalgenes.org