Kari Rosbeck joined the Tuberous Sclerosis Alliance in June 2001 and became president and CEO in November 2007. She has been involved in nonprofit fundraising and volunteer management for more than 30 years. During her tenure as president and CEO, the Tuberous Sclerosis Alliance established a comprehensive research program fostering collaboration with industry and academia to move treatments for tuberous sclerosis complex forward in a more expedited way.