Luisa Leal is the founder of The Akari Foundation, named after her youngest daughter and meaning “light of hope.” Luisa founded the organization after meeting her former partner’s twin children, who were diagnosed with Duchenne Muscular Dystrophy. She discovered that there was a serious lack of information on the disease in Spanish, so Luisa began translating any information she found into Spanish. Since founding the organization, Luisa has collaborated with other Duchenne organizations to expand The Akari Foundation’s mission to help families by providing them with access to information and support in their native language.