Medical/scientific research liaison at The Global Foundation for Peroxisomal Disorders,
assistant professor at Montclair State University
Dr. Mousumi Bose is the mother of Ilan Betzer (2010-2011), who was born with Zellweger spectrum disorder (ZSD), a rare, life-limiting peroxisome disorder. As a result of her experience, Dr. Bose re-focused her career goals to study rare disease. With the support of the Global Foundation for Peroxisomal Disorders, a ZSD advocacy group, Dr. Bose contributed to the first published treatment guidelines for ZSD. Currently, she holds a faculty position in the Department of Nutrition and Food Studies at Montclair State University, NJ, studying quality of life in rare disease families. Dr. Bose is passionate about learning what is important to rare disease families and using that information to help improve their lives.