Patricia Cristina had a midgut volvulus in utero; she lost the entire small bowel due necrotising enterocolitis. She’s been tpn dependant since birth, because of that Patricia has liver damage. This little angel lived her first 6 months of life in hospitals. In 2013 Patricia was listed for a multi organ transplant (gastrointestinal).
She has 3 different pumps for medicines/parental nutrition and a mic-key button to drain her stomach. Despite her condition, Patricia is pretty stable; thanks to her amazing doctors, nurses, parents, therapists and last but not least her supplies company.
Takes a lot of courage and sacrifice but it’s 100% worth it. It’s a long journey but with love and support is way easier. Patricia Cristina is the joy and blessing of the family. We’re still waiting for Patricia’s gift of life… Meanwhile we beat the odds.
March is the Month to Share YOUR Story!
Do you or your child have a rare disease? We want to hear your story. This month we celebrate all patients and their families who speak out on behalf of their condition to raise awareness, connect with others and inspire the community. Make sure to share your story with us by writing to us here.
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